Hi! I’m Jasmin.
This is my first ever blog post and, to be honest, I’ve been a little hesitant to start. Though many people have encouraged me and have shown support of the idea, I needed to make sure I felt ready to share such personal posts with everyone. I’ve been spending the past few months writing nearly every day, mostly in preparation for new posts (also because I love to write). I wanted a way to be able to share more of my story than I’ve ever shared before.
I was diagnosed with a rare, debilitating bone disease known as Fibrodysplasia Ossificans Progressiva (FOP) when I was 5 1/2 years old. FOP causes my muscles and connective tissues to turn to bone, gradually creating a “second” immobilizing skeleton. This condition is painful, spontaneous, and progressive. There are less than 300 known cases in the United States and 800 worldwide.
Living with a serious illness is often challenging and frustrating, but I’m determined to not let it define who I am or stop me from achieving a goal or dream. I have a strong faith in God, a crazy love for cats, and a lot of positivity and joy in my heart.
I’m excited to finally make this blog public! It’s been on my mind for the longest time. Feel free to post a comment, share with a friend, or subscribe via email! xo