First post!

Hi! I’m Jasmin.

This is my first ever blog post and, to be honest, I’ve been a little hesitant to start. Though many people have encouraged me and have shown support of the idea, I needed to make sure I felt ready to share such personal posts with everyone. I’ve been spending the past few months writing nearly every day, mostly in preparation for new posts (also because I love to write). I wanted a way to be able to share more of my story than I’ve ever shared before.

I was diagnosed with a rare, debilitating bone disease known as Fibrodysplasia Ossificans Progressiva (FOP) when I was 5 1/2 years old. FOP causes my muscles and connective tissues to turn to bone, gradually creating a “second” immobilizing skeleton. This condition is painful, spontaneous, and progressive. There are less than 300 known cases in the United States and 800 worldwide.

Living with a serious illness is often challenging and frustrating, but I’m determined to not let it define who I am or stop me from achieving a goal or dream. I have a strong faith in God, a crazy love for cats, and a lot of positivity and joy in my heart.

I’m excited to finally make this blog public! It’s been on my mind for the longest time. Feel free to post a comment, share with a friend, or subscribe via email! xo

Read more


Facebook | Twitter

Print Friendly, PDF & Email

Leave a Reply

10 Comments on "First post!"

Notify of
avatar
Sort by:   newest | oldest
Noodle & : > D)=
Guest

I love that you are blogging, I love your blog (and its title) and I love you. Your spirit, intelligence and artistry continue to be a gift to us all. Thank you, Jasmin, for your courage and willingness to share that gift via this medium, where who knows how many others will benefit from your great wisdom, your unique experiences and your sparkling spirit.

Jasmin Floyd
Guest

Noodle! Thank you so much :) I love you, too!! xoxo

Amanda
Guest

Well done Jasmin! Love the title of your blog and will be a faithful reader. Its time the world got to know SUCH a special person.

Jasmin Floyd
Guest

Thank you so much!!

marilyn
Guest

It takes a lot of courage to share your story. It’s an honor to know you & your mom.

Jasmin Floyd
Guest

Thank you :)

wpDiscuz

Site Footer

Sliding Sidebar

Instagram

  • I wonder how many of our neighbors actually saw mehellip
    5 days ago by p0sitivity I wonder how many of our neighbors actually saw me come outside just to take photos of this sunset
  • Happy 21st to one of the most beautiful souls Ihellip
    1 week ago by p0sitivity Happy 21st to one of the most beautiful souls I know. Our friendship began on Tumblr nearly seven years ago and you haven’t left my side since. I love our crazy plans (like spending six weeks together the first time we met in person, including several days at Disney by…
  • I hope everyone has a beautiful week been feeling inspiredhellip
    4 weeks ago by p0sitivity I hope everyone has a beautiful week been feeling inspired every Sunday thanks to  @madisenkuhn 's encouraging emails (madisen.co)
  • The face of mischief mainecoon
    1 month ago by p0sitivity The face of mischief.  #mainecoon 
  • To be yourself in a world that is constantly tryinghellip
    1 month ago by p0sitivity “To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment.” ✨-Ralph Waldo Emerson
  • A year ago today I was filmed for CNN!! Ithellip
    2 months ago by p0sitivity A year ago today I was filmed for CNN!! It was an honor to have the opportunity to share my story and raise awareness of FOP. I've been so touched and inspired by the outpouring of love and support after my feature premiered online last December. To the two people…
  • New blog theme new updates post!  its been fourhellip
    2 months ago by p0sitivity New blog theme, new updates post! ✍ it's been four months since I've been able to edit and publish something I've written and I'm thankful to finally have a little more energy! If you'd like to know more of what's been going on with me, go to jasminfloyd.com (link on…
  • Havent been able to leave the house in three weekshellip
    3 months ago by p0sitivity Haven't been able to leave the house in three weeks (since the late night ER trip). The prednisone helped the pleurisy and jaw pain, but I'm now experiencing a new FOP flare-up in my upper back. This isn't exactly how I pictured this summer to go-- doing my best to…
  • In the week since my last post Ive been onhellip
    3 months ago by p0sitivity In the week since my last post I've been on three different anti-inflammatories (experienced side effects from each of them). I'm now on a high dose of prednisone, a steroid that also helps decrease inflammation, after noticing another FOP flare-up in my jaw. The flare-up is making it more tiring…
  • Needed to go to the ER last night from 9hellip
    4 months ago by p0sitivity Needed to go to the ER last night from 9 pm until 3 am // For the past few days I've been experiencing pain in the left side of my ribs and chest - it hurts to breathe fully and I've been feeling weak. I have a restricted lung capacity…

Categories