Rare Disease Day (2/28/15)

World Rare Disease Day is this Saturday, February 28th, 2015! I decided to dedicate this post to raise some awareness of rare diseases as a whole. I hope you will take a few minutes to read the facts, watch the videos, and share this post with a friend! Thank you. :)

  • In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals.
  • There are 30 million people in the U.S. currently living with a rare disease.
    (1 in 10 or 10% of the country)
  • There are around 7,000 different types of rare diseases and disorders.
  • If all the people with rare diseases lived in one country, it would be the world’s 3rd most populous country.
  • Approximately 80% of rare diseases are caused by a faulty gene.
  • 50% of the people affected by rare diseases are kids.
  • 80% of rare diseases are genetic, like FOP. (Genetic disorders are present throughout the person’s life even if their symptoms aren’t immediate.)
  • 95% of rare diseases don’t have a single FDA approved drug treatment.

Global Genes
Rare Disease Day


Show your support on Facebook!

  1. International FOP Association
  2. Global Genes Project
  3. Rare Disease Day

“RSVP” to the World Rare Disease Day 2015 Facebook event – invite your friends!


Lindsay-Jazz-Alex_Disney2013
Disney World 2013 with FOP friends (25th IFOPA Anniversary)

globalgenes.org


Informational Videos

Video 1
Video 2


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6 Comments on "Rare Disease Day (2/28/15)"

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John
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Thanks for the great information, Jasmin.

Cathee
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Your post is so helpful in explaining rare diseases and relaying it on to others as we approach Rare Disease Day this Saturday. I will share your information and the videos with family and friends. Love, love your adorable Disney picture “Disney Girl!”

Jasmin Floyd
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Thank you so much!! xo

victoria
Guest

Thank you for sharing the FB event. :)

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