World Rare Disease Day is this Saturday, February 28th, 2015! I decided to dedicate this post to raise some awareness of rare diseases as a whole. I hope you will take a few minutes to read the facts, watch the videos, and share this post with a friend! Thank you. :)
In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals.
- There are 30 million people in the U.S. currently living with a rare disease.
(1 in 10 or 10% of the country)
There are around 7,000 different types of rare diseases and disorders.
- If all the people with rare diseases lived in one country, it would be the world’s 3rd most populous country.
- Approximately 80% of rare diseases are caused by a faulty gene.
- 50% of the people affected by rare diseases are kids.
- 80% of rare diseases are genetic, like FOP. (Genetic disorders are present throughout the person’s life even if their symptoms aren’t immediate.)
- 95% of rare diseases don’t have a single FDA approved drug treatment.
“RSVP” to the World Rare Disease Day 2015 Facebook event – invite your friends!