Letter to Loved Ones

Dear friends and family,

I know it may be difficult for you to see what I’m going through, whether it’s through my personal posts or updates when I’m not doing well.

I understand if you feel overwhelmed and intimidated at times. You may have never known someone as medically complex as me before. Maybe you’re not sure what to say, or fear you’d potentially say something wrong. You might feel helpless, wishing you could do more.

As you may know, my health can change on a daily basis without any sort of warning. I have some level of pain every day and sometimes experience flare-ups for an extended period of time. These flare-ups signify my disease progressing and often limit my physical abilities even more.

My body is constantly changing; you may be gradually noticing some of these types of changes in me. I’m not able to regularly participate in many of the same activities and outings I used to do with you. I don’t have as much energy, stamina, or physical mobility as I did just five years ago. This is a very difficult realization to come to terms with.

I don’t expect you to always know what to say or do. If I’m sharing something with you, that means I feel comfortable being vulnerable with you. If I don’t open up to you or if I’m vague, then that usually just means I’m not quite ready to explain what’s going on. Chronic pain, flare-ups, and disease progression are all very personal experiences for me and can be difficult to put into words.

I tend to isolate myself from others when things get especially difficult. During these times I may seem distracted, withdrawn, or more tired than usual. I’m unable to process much of anything when my mind is so focused on what my disease is doing to my body. Depending on what’s happening in my life, it may take me a while to get back to feeling like myself.

If you’re one of the people who have remained close to me even though I seemed distant or was out of touch, I honestly don’t have enough words to express how much you mean to me. Thank you for not giving up on our friendship even when I haven’t been able to be the same type of friend back to you. I value you more than you know.

One of the phrases I hear most often is, “I wish there was something I could do.” I know you mean well when you say this, and I do appreciate that you’re concerned about me. I also understand that you simply want to be there for me in a larger capacity. However, trust me when I say that you’ve already been helping just by showing you care.

I’m encouraged by your virtual support, inspired by your thoughtfulness and generosity, and comforted by your words of encouragement and heartfelt prayers. You have given me so much strength and courage to get through each day. Much, much more than you could even imagine. Thank you.

Love,
Jasmin


Facebook | Twitter

Print Friendly, PDF & Email

Leave a Reply

7 Comments on "Letter to Loved Ones"

avatar
  Subscribe  
newest oldest
Notify of
Marilyn R
Guest

Your thoughtfulness is inspiring!

Noodle
Guest

Dear Jasmin—My love and gratitude for and to you is ongoing, and it swells in response to the artistry and authenticity of your writing. So, more love and more thanks to and for you, from me (for one).

Cathee Antonetz
Guest

Jasmin, You never cease to amaze me with your beauty, eloquence, full heart and soul! I think of you so much and have you always in my prayers to our Lord and Blessed Mother Mary! I love you dear, dear Jasmin! XOXO, Cathee

Site Footer

Sliding Sidebar

Instagram

  • So happy to be feeling more like myself again Thankhellip
    1 day ago by p0sitivity So happy to be feeling more like myself again. Thank you for all the love and prayers ☀️
  • Ive had a head cold and mild bronchitis for thehellip
    4 days ago by p0sitivity I’ve had a head cold and mild bronchitis for the past week, but I’m gradually beginning to feel better. It’s always a little scary for me to be sick on top of dealing with FOP. My body isn’t able to fight off a sickness as quickly or easily, and certain…
  • Remembering my incredible grandpa this Valentines Day alzassociation ENDALZ TheLongestDay
    1 week ago by p0sitivity Remembering my incredible grandpa this Valentine’s Day  @alzassociation   #ENDALZ   #TheLongestDay 
  • Prince Prancer
    1 week ago by p0sitivity Prince Prance(r)
  • One month until Im back in my favorite city Sanhellip
    3 weeks ago by p0sitivity One month until I’m back in my favorite city, San Diego ☀❤ // I especially love visiting the zoo with my family and renting one of these scooters. I’m unable to walk longer distances without feeling fatigued, but this allows me to conserve my energy and still fully enjoy the…
  • Thank you for all the love new followers!  Ahellip
    3 weeks ago by p0sitivity Thank you for all the love, new followers! // A YouTuber recently filmed himself reacting to my CNN profile feature video!! Search “Reaction Time” on YouTube to watch it (he also has some of the nicest fans). ❤️
  • Always grateful for good days and whenever I feel morehellip
    3 weeks ago by p0sitivity Always grateful for good days and whenever I feel more like myself
  • January 27 2013  I reflect back on this journalhellip
    4 weeks ago by p0sitivity January 27, 2013 // I reflect back on this journal entry every year. It’s crazy to see how much my writing style has changed since then and how I’ve grown as an individual. I posted it on Facebook the following week not even realizing how vulnerable it was. The response…
  • Missing these two a little extra today
    4 weeks ago by p0sitivity Missing these two a little extra today
  • My first blog post of the year is dedicated tohellip
    1 month ago by p0sitivity My first blog post of the year is dedicated to everyone who has supported me throughout my life with FOP. ❤️❤️ jasminfloyd.com (link in bio)  #fibrodysplasiaossificansprogressiva 

Categories