These are various articles I have come across over the years that have changed my life in some way. I hope that you will take the time to read them and be inspired.


The Spoon Theory

“Its hard, the hardest thing I ever had to learn is to slow down, and not do everything. I fight this to this day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wanted her to feel that frustration. I wanted her to understand, that everything everyone else does comes so easy, but for me it is one hundred little jobs in one. I need to think about the weather, my temperature that day, and the whole day’s plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It is in that lifestyle, the difference between being sick and healthy. It is the beautiful ability to not think and just do. I miss that freedom. I miss never having to count “spoons”.”

I Am Not My Body (written/spoken word)

“Some people think I am my body and treat me with prejudice or pity. Some are just curious. It took years, but I have learned to ignore the stares and just smile back. My body has taught me to respect my fellow humans — even the thin, able-bodied, beautiful ones.

I am my words, my ideas and my actions. I am filled with love, humor, ambition and intelligence. This I believe: I am your fellow human being and, like you, I am so much more than a body.”

A Polite Way of Saying “Incurable”

“But sickness? Sickness comes for you no matter how tough you are. I can try to ignore it, to push it away, but the truth is still there, hard and edgeless: I have lost something that cannot be recovered. There is something stubborn and unwelcome in my body, and it is stronger than my will.

My illness is not a death sentence, at least not an immediate one. If all goes well, I have a lot more years ahead. The struggle now is to accept the dichotomy: to be sick and still be whole. To be sick and still be tough. To be sick, and maybe even to be tougher than I was before.”

What It’s Really Like to Be Chronically Ill

“Being sick makes you strong. Being sick makes you weak. Being sick gives you insight and knowledge about life as it eats away at your own. Being sick is the greatest blessing in disguise. It is so much more than just having an illness. It’s having your entire life be taken out of your control, and fighting to get it back. And that fight will never end.”

Mom I’m Disabled, Not Dead

“Here’s the thing: being disabled comes with some serious challenges. But we have the choice of allowing those challenges to keep us stuck at home or we can say hey, this makes me appreciate life so much more and I am going to LIVE IT! At least that is what my daughter says about her disease and how it has impacted her life and level of “ability.””

 [updated 2/9/15]


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