After an amazing year (and only one other blog post), I’m slowly beginning to get back into blogging. I definitely needed to take some time off, just so I could focus on enjoying my travels! I’ll be posting some updates soon, but for now I wanted to begin this Question & Answer blog series. I’ve always enjoyed…
Category: About Me
Filming for CNN!
Throughout my youth I was very self-conscious, tentative, and reserved. My insecurities were greatly heightened by the progression of my disease, FOP, but I hid a lot of what I went through from anyone outside of my immediate family. It was too intimidating to imagine opening up about my struggles and sharing my perspectives on life with…
Living with Limitations
What would life be like without any medical obstacles, serious physical limitations, or extra accommodations? I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the…
23 Years
This list highlights 23 things (lessons, realizations, self reminders, etc.) I’ve learned in 23 years in honor of my birthday on May 25th! I’ve seen other bloggers make posts similar to this and thought it’d be a unique way to acknowledge a birthday. 1. Be honest with yourself and with others. Share your story. 2….
Hope for a Cure
My family and I used to manage a greeting cards and gifts company to raise awareness for my rare disease, Fibrodysplasia Ossificans Progressiva (FOP). My life revolved around planning my new card designs, watching my dad scan, print, and prepare the cards, and helping my mom package and label our products for the various craft…