Living with Limitations

What would life be like without any medical obstacles, serious physical limitations, or extra accommodations? I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the world. My best friend is

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23 Years

This list highlights 23 things (lessons, realizations, self reminders, etc.) I’ve learned in 23 years in honor of my birthday on May 25th! I’ve seen other bloggers make posts similar to this and thought it’d be a unique way to acknowledge a birthday. 1. Be honest with yourself and with others. Share your story. 2. People will stare, but it’s

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Hope for a Cure

My family and I used to manage a greeting cards and gifts company to raise awareness for my rare disease, Fibrodysplasia Ossificans Progressiva (FOP). My life revolved around planning my new card designs, watching my dad scan, print, and prepare the cards, and helping my mom package and label our products for the various craft fairs we attended each year.

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One Year!

Today (February 21st) marks the one year anniversary of when I published my first blog post! Prior to this day, the most I had ever shared with family and friends was the occasional health update briefly explaining new FOP flare-ups. I’d ask for thoughts and prayers without going into much detail on how my disease was actually affecting my body

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  • In the week since my last post Ive been onhellip
    2 weeks ago by p0sitivity In the week since my last post I've been on three different anti-inflammatories (experienced side effects from each of them). I'm now on a high dose of prednisone, a steroid that also helps decrease inflammation, after noticing another FOP flare-up in my jaw. The flare-up is making it more tiring…
  • Needed to go to the ER last night from 9hellip
    3 weeks ago by p0sitivity Needed to go to the ER last night from 9 pm until 3 am // For the past few days I've been experiencing pain in the left side of my ribs and chest - it hurts to breathe fully and I've been feeling weak. I have a restricted lung capacity…
  • One month ago thankful for my best friend shayweasel hellip
    4 weeks ago by p0sitivity One month ago- thankful for my best friend  @shayweasel  & her Noodle ❤️ even driving to the airport and making rest stops became an adventure!
  • One of my favorite traditions is helping to sort bookshellip
    1 month ago by p0sitivity One of my favorite traditions is helping to sort books for our church's 4th of July jamboree! There's nothing like kids books to make you feel nostalgic ❤️
  • Happy Fathers Day
    1 month ago by p0sitivity Happy Father's Day
  • One year ago today Thankful for such wonderful friends andhellip
    1 month ago by p0sitivity One year ago today. Thankful for such wonderful friends and the memories that have filled our spirits every single day, in the midst of everything going on in the world. ❤️️‍ (not pictured:  @kclarkeeeee )
  • My neighbors cat is the friendliest lil beauty
    2 months ago by p0sitivity My neighbor's cat is the friendliest lil beauty
  • 2 months ago by p0sitivity
  • Week 1 in NC birthday celebrations evening walks puppy snuggleshellip
    2 months ago by p0sitivity Week 1 in NC: birthday celebrations, evening walks, puppy snuggles, lots of selfies, eating baby food with  @shayweasel  (since we both have trouble chewing), alternating between TWD and Gilmore Girls, texting each other gifs when we're in the same room, reuniting with my favorite small human, midnight snacks, heart to…
  • Spent my 24th birthday with my best friend shayweasel alsohellip
    2 months ago by p0sitivity Spent my 24th birthday with my best friend  @shayweasel  (also my photographer)

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