Spring/Summer Update

The past year has been filled with amazing opportunities, new experiences, challenging realizations, and unexpected setbacks. I’ve had wonderful days surrounded by friends as well as very difficult days due to FOP flare-ups. I haven’t shared much about my personal life in awhile, so I wanted to finally write about some of the things that have been going on. First off,

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The Act of Surrendering

“Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake.” -Victor Hugo Anyone who knows me knows that I’m not one to give up. I’m determined, resilient, and optimistic. I’m able to stay positive and I look for something

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How Flare-ups Affect Me

Living in a body with FOP is like being forced to ride a completely different roller coaster every day with no time in between to catch your breath. I never know when the next drop (unexpected flare-up) might be, if I’ll stop going in loops (seemingly never-ending pain), or if it’ll be a smoother ride for a while. At the

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Health Update: Flare-ups

“Acceptance doesn’t mean resignation; it means understanding that something is what it is and that there’s got to be a way through it.” -Michael J. Fox I’ve been dealing with multiple flare-ups of new FOP bone growth for the past two months. It’s very painful, frustrating, and exhausting. The most prominent flare-up, my left hip, is also the most familiar

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Winter Health Update

The past few months have been frustrating for me due to the freezing cold weather and the insane amount of snow that Connecticut has gotten over the course of a month (it’s only been a month!?). Because of FOP’s progression the past couple of years, it has become more difficult for me to remain active during the winter months (usually

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  • Cabin circle  the true magic of Camp I havehellip
    2 weeks ago by p0sitivity Cabin circle - the true magic of Camp. I have so many childhood memories of walking up this path hand in hand with my new friends and counselors I adored. We'd chant the cabin cheers we memorized, determined to be the loudest so we could be the first ones into…
  • My baby Prancer turns 14 today!! Ive been feeling especiallyhellip
    3 weeks ago by p0sitivity My baby Prancer turns 14 today!! I've been feeling especially sentimental and emotional lately thinking back to his adoption day in 2003. I was only 10 when we got him & I'm now 24. He's been with me in every Connecticut town we've lived in. He was my greatest comfort…
  • 4 weeks ago by p0sitivity
  • I wonder how many of our neighbors actually saw mehellip
    1 month ago by p0sitivity I wonder how many of our neighbors actually saw me come outside just to take photos of this sunset
  • Happy 21st to one of the most beautiful souls Ihellip
    1 month ago by p0sitivity Happy 21st to one of the most beautiful souls I know. Our friendship began on Tumblr nearly seven years ago and you haven’t left my side since. I love our crazy plans (like spending six weeks together the first time we met in person, including several days at Disney by…
  • I hope everyone has a beautiful week been feeling inspiredhellip
    2 months ago by p0sitivity I hope everyone has a beautiful week been feeling inspired every Sunday thanks to  @madisenkuhn 's encouraging emails (madisen.co)
  • The face of mischief mainecoon
    2 months ago by p0sitivity The face of mischief.  #mainecoon 
  • A year ago today I was filmed for CNN!! Ithellip
    3 months ago by p0sitivity A year ago today I was filmed for CNN!! It was an honor to have the opportunity to share my story and raise awareness of FOP. I've been so touched and inspired by the outpouring of love and support after my feature premiered online last December. To the two people…
  • New blog theme new updates post!  its been fourhellip
    3 months ago by p0sitivity New blog theme, new updates post! ✍ it's been four months since I've been able to edit and publish something I've written and I'm thankful to finally have a little more energy! If you'd like to know more of what's been going on with me, go to jasminfloyd.com (link on…
  • Havent been able to leave the house in three weekshellip
    4 months ago by p0sitivity Haven't been able to leave the house in three weeks (since the late night ER trip). The prednisone helped the pleurisy and jaw pain, but I'm now experiencing a new FOP flare-up in my upper back. This isn't exactly how I pictured this summer to go-- doing my best to…

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