Letter to Loved Ones

Dear friends and family, I know it may be difficult for you to see what I’m going through, whether it’s through my personal posts or updates when I’m not doing well. I understand if you feel overwhelmed and intimidated at times. You may have never known someone as medically complex as me before. Maybe you’re not sure what to say, or fear you’d

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Filming for CNN!

Throughout my youth I was very self-conscious, tentative, and reserved. My insecurities were greatly heightened by the progression of my disease, FOP, but I hid a lot of what I went through from anyone outside of my immediate family. It was too intimidating to imagine opening up about my struggles and sharing my perspectives on life with a rare disease. I haven’t really

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Spring/Summer Update

The past year has been filled with amazing opportunities, new experiences, challenging realizations, and unexpected setbacks. I’ve had wonderful days surrounded by friends as well as very difficult days due to FOP flare-ups. I haven’t shared much about my personal life in awhile, so I wanted to finally write about some of the things that have been going on. First off,

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Living with Limitations

What would life be like without any medical obstacles, serious physical limitations, or extra accommodations? I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the world. My best friend is

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Finding Acceptance

Confidence and self-love can be challenging to maintain when you’re living with a disability. My disease, FOP, is progressive so I continuously have had to adapt to new physical limitations. I’ve struggled with body issues and many insecurities throughout my life. Before social media, I had a difficult time finding acceptance – in both society and within myself. The Twitter

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  • My first blog post of the year is dedicated tohellip
    3 days ago by p0sitivity My first blog post of the year is dedicated to everyone who has supported me throughout my life with FOP. ❤️❤️ jasminfloyd.com (link in bio)
  • After seven years of friendship we finally had the opportunityhellip
    7 days ago by p0sitivity After seven years of friendship, we finally had the opportunity to experience California together last month! It was such an honor to be able to share my FOP family with my bff ❤️
  • It is the places where your pain hides that needhellip
    2 weeks ago by p0sitivity “It is the places where your pain hides that need your love the most.” ✨ - @cleowade 
  • Already planning road trips together months in advance  missedhellip
    2 weeks ago by p0sitivity Already planning road trips together months in advance ‍♂️ missed my best friend ❤️
  • Spending this blizzardy day looking through pics from my triphellip
    3 weeks ago by p0sitivity Spending this blizzardy day looking through pics from my trip to CA last month - already excited for the next adventures ❤️  #twomonths  : @carolraleigh 
  • Too cute to move
    3 weeks ago by p0sitivity Too cute to move ‍♀️
  • Im extremely grateful to be surrounded by so many incrediblehellip
    3 weeks ago by p0sitivity I’m extremely grateful to be surrounded by so many incredible friends, family, and supporters. You’ve all given me hope, encouragement, strength, and courage to make it through each day. After a really difficult year with FOP, I’m so ready for new adventures and even more amazing memories. ❤❤❤  #2017 
  • Spending time back home in Wisconsin always reminds me ofhellip
    4 weeks ago by p0sitivity Spending time back home in Wisconsin always reminds me of my childhood self ❤️  #tbt 
  • When its 0F but feels like 22F anything is consideredhellip
    4 weeks ago by p0sitivity When it’s 0°F but “feels like” -22°F, anything is considered warmer ‍♀️☃️
  • Merry Christmas from my Midwest fam
    4 weeks ago by p0sitivity Merry Christmas from my Midwest fam ❤️

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