The past year has been filled with amazing opportunities, new experiences, challenging realizations, and unexpected setbacks. I’ve had wonderful days surrounded by friends as well as very difficult days due to FOP flare-ups. I haven’t shared much about my personal life in awhile, so I wanted to finally write about some of the things that have…
Category: Living with FOP
Living with Limitations
What would life be like without any medical obstacles, serious physical limitations, or extra accommodations? I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the…
Finding Acceptance
Confidence and self-love can be challenging to maintain when you’re living with a disability. My disease, FOP, is progressive so I continuously have had to adapt to new physical limitations. I’ve struggled with body issues and many insecurities throughout my life. Before social media, I had a difficult time finding acceptance – in both society…
The Act of Surrendering
“Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake.” -Victor Hugo Anyone who knows me knows that I’m not one to give up. I’m determined, resilient, and optimistic. I’m able to stay positive…
Airplanes & Independence
Growing up with a physical disability made me feel as though I wasn’t capable of doing anything without some type of assistance or accommodations. I couldn’t participate in various activities (events, games, sports, etc.) or reach the same milestones (driving, working, college away from home, traveling abroad, etc.). I wanted to experience that same type…