The Act of Surrendering

“Have courage for the great sorrows of life and patience for the small ones; and when you have laboriously accomplished your daily task, go to sleep in peace. God is awake.” -Victor Hugo Anyone who knows me knows that I’m not one to give up. I’m determined, resilient, and optimistic. I’m able to stay positive and I look for something

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Airplanes & Independence

Growing up with a physical disability made me feel as though I wasn’t capable of doing anything without some type of assistance or accommodations. I couldn’t participate in various activities (events, games, sports, etc.) or reach the same milestones (driving, working, college away from home, traveling abroad, etc.). I wanted to experience that same type of independence, but didn’t know

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How Flare-ups Affect Me

Living in a body with FOP is like being forced to ride a completely different roller coaster every day with no time in between to catch your breath. I never know when the next drop (unexpected flare-up) might be, if I’ll stop going in loops (seemingly never-ending pain), or if it’ll be a smoother ride for a while. At the

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Health Update: Flare-ups

“Acceptance doesn’t mean resignation; it means understanding that something is what it is and that there’s got to be a way through it.” -Michael J. Fox I’ve been dealing with multiple flare-ups of new FOP bone growth for the past two months. It’s very painful, frustrating, and exhausting. The most prominent flare-up, my left hip, is also the most familiar

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  • So happy to be feeling more like myself again Thankhellip
    1 day ago by p0sitivity So happy to be feeling more like myself again. Thank you for all the love and prayers ☀️
  • Ive had a head cold and mild bronchitis for thehellip
    4 days ago by p0sitivity I’ve had a head cold and mild bronchitis for the past week, but I’m gradually beginning to feel better. It’s always a little scary for me to be sick on top of dealing with FOP. My body isn’t able to fight off a sickness as quickly or easily, and certain…
  • Remembering my incredible grandpa this Valentines Day alzassociation ENDALZ TheLongestDay
    1 week ago by p0sitivity Remembering my incredible grandpa this Valentine’s Day  @alzassociation   #ENDALZ   #TheLongestDay 
  • Prince Prancer
    1 week ago by p0sitivity Prince Prance(r)
  • One month until Im back in my favorite city Sanhellip
    3 weeks ago by p0sitivity One month until I’m back in my favorite city, San Diego ☀❤ // I especially love visiting the zoo with my family and renting one of these scooters. I’m unable to walk longer distances without feeling fatigued, but this allows me to conserve my energy and still fully enjoy the…
  • Thank you for all the love new followers!  Ahellip
    3 weeks ago by p0sitivity Thank you for all the love, new followers! // A YouTuber recently filmed himself reacting to my CNN profile feature video!! Search “Reaction Time” on YouTube to watch it (he also has some of the nicest fans). ❤️
  • Always grateful for good days and whenever I feel morehellip
    3 weeks ago by p0sitivity Always grateful for good days and whenever I feel more like myself
  • January 27 2013  I reflect back on this journalhellip
    4 weeks ago by p0sitivity January 27, 2013 // I reflect back on this journal entry every year. It’s crazy to see how much my writing style has changed since then and how I’ve grown as an individual. I posted it on Facebook the following week not even realizing how vulnerable it was. The response…
  • Missing these two a little extra today
    4 weeks ago by p0sitivity Missing these two a little extra today
  • My first blog post of the year is dedicated tohellip
    1 month ago by p0sitivity My first blog post of the year is dedicated to everyone who has supported me throughout my life with FOP. ❤️❤️ jasminfloyd.com (link in bio)  #fibrodysplasiaossificansprogressiva 

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