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One Year!

Today (February 21st) marks the one year anniversary of when I published my first blog post! Prior to this day, the most I had ever shared with family and friends was the occasional health update briefly explaining new FOP flare-ups. I’d ask for thoughts and prayers without going into much detail on how my disease was actually affecting my body

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To My Camp Counselors

I feel very fortunate to have grown up less than 10 minutes away from an organization that has remained close to my heart: Paul Newman’s The Hole in the Wall Gang Camp (THITWGC) in Ashford, Connecticut. It gave me all that I needed to thrive as a young girl with a life-threatening condition. Camp subsequently changed my life without me

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How Flare-ups Affect Me

Living in a body with FOP is like being forced to ride a completely different roller coaster every day with no time in between to catch your breath. I never know when the next drop (unexpected flare-up) might be, if I’ll stop going in loops (seemingly never-ending pain), or if it’ll be a smoother ride for a while. At the

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2015 Highlights

Happy New Year!! These were some of my favorite days of 2015. 1. June 13th – mini photo op with my Boston-area friends before we watched our favorite music duo, Karmin, open for Lindsey Stirling! So many laughs, photos, and inside jokes. 2. September 8th – had a good day where I felt more like myself following so many weeks

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  • So happy to be feeling more like myself again Thankhellip
    1 day ago by p0sitivity So happy to be feeling more like myself again. Thank you for all the love and prayers ☀️
  • Ive had a head cold and mild bronchitis for thehellip
    4 days ago by p0sitivity I’ve had a head cold and mild bronchitis for the past week, but I’m gradually beginning to feel better. It’s always a little scary for me to be sick on top of dealing with FOP. My body isn’t able to fight off a sickness as quickly or easily, and certain…
  • Remembering my incredible grandpa this Valentines Day alzassociation ENDALZ TheLongestDay
    1 week ago by p0sitivity Remembering my incredible grandpa this Valentine’s Day  @alzassociation   #ENDALZ   #TheLongestDay 
  • Prince Prancer
    1 week ago by p0sitivity Prince Prance(r)
  • One month until Im back in my favorite city Sanhellip
    3 weeks ago by p0sitivity One month until I’m back in my favorite city, San Diego ☀❤ // I especially love visiting the zoo with my family and renting one of these scooters. I’m unable to walk longer distances without feeling fatigued, but this allows me to conserve my energy and still fully enjoy the…
  • Thank you for all the love new followers!  Ahellip
    3 weeks ago by p0sitivity Thank you for all the love, new followers! // A YouTuber recently filmed himself reacting to my CNN profile feature video!! Search “Reaction Time” on YouTube to watch it (he also has some of the nicest fans). ❤️
  • Always grateful for good days and whenever I feel morehellip
    3 weeks ago by p0sitivity Always grateful for good days and whenever I feel more like myself
  • January 27 2013  I reflect back on this journalhellip
    4 weeks ago by p0sitivity January 27, 2013 // I reflect back on this journal entry every year. It’s crazy to see how much my writing style has changed since then and how I’ve grown as an individual. I posted it on Facebook the following week not even realizing how vulnerable it was. The response…
  • Missing these two a little extra today
    4 weeks ago by p0sitivity Missing these two a little extra today
  • My first blog post of the year is dedicated tohellip
    1 month ago by p0sitivity My first blog post of the year is dedicated to everyone who has supported me throughout my life with FOP. ❤️❤️ jasminfloyd.com (link in bio)  #fibrodysplasiaossificansprogressiva 

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