Blog Posts

To My Camp Counselors

I feel very fortunate to have grown up less than 10 minutes away from an organization that has remained close to my heart: Paul Newman’s The Hole in the Wall Gang Camp (THITWGC) in Ashford, Connecticut. It gave me all that I needed to thrive as a young girl with a life-threatening condition. Camp subsequently changed my life without me

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How Flare-ups Affect Me

Living in a body with FOP is like being forced to ride a completely different roller coaster every day with no time in between to catch your breath. I never know when the next drop (unexpected flare-up) might be, if I’ll stop going in loops (seemingly never-ending pain), or if it’ll be a smoother ride for a while. At the

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2015 Highlights

Happy New Year!! These were some of my favorite days of 2015. 1. June 13th – mini photo op with my Boston-area friends before we watched our favorite music duo, Karmin, open for Lindsey Stirling! So many laughs, photos, and inside jokes. 2. September 8th – had a good day where I felt more like myself following so many weeks

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Traveling to California

It’s almost been two months since I traveled by myself to Southern California! I had an amazing time, but I can wholeheartedly say that it was a miracle I was able to fly. Up until the night before traveling I was still experiencing a lot of pain (refer to my last blog post here) and felt very discouraged. I had planned this

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  • I wonder how many of our neighbors actually saw mehellip
    5 days ago by p0sitivity I wonder how many of our neighbors actually saw me come outside just to take photos of this sunset
  • Happy 21st to one of the most beautiful souls Ihellip
    1 week ago by p0sitivity Happy 21st to one of the most beautiful souls I know. Our friendship began on Tumblr nearly seven years ago and you haven’t left my side since. I love our crazy plans (like spending six weeks together the first time we met in person, including several days at Disney by…
  • I hope everyone has a beautiful week been feeling inspiredhellip
    4 weeks ago by p0sitivity I hope everyone has a beautiful week been feeling inspired every Sunday thanks to  @madisenkuhn 's encouraging emails (madisen.co)
  • The face of mischief mainecoon
    1 month ago by p0sitivity The face of mischief.  #mainecoon 
  • To be yourself in a world that is constantly tryinghellip
    1 month ago by p0sitivity “To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment.” ✨-Ralph Waldo Emerson
  • A year ago today I was filmed for CNN!! Ithellip
    2 months ago by p0sitivity A year ago today I was filmed for CNN!! It was an honor to have the opportunity to share my story and raise awareness of FOP. I've been so touched and inspired by the outpouring of love and support after my feature premiered online last December. To the two people…
  • New blog theme new updates post!  its been fourhellip
    2 months ago by p0sitivity New blog theme, new updates post! ✍ it's been four months since I've been able to edit and publish something I've written and I'm thankful to finally have a little more energy! If you'd like to know more of what's been going on with me, go to jasminfloyd.com (link on…
  • Havent been able to leave the house in three weekshellip
    3 months ago by p0sitivity Haven't been able to leave the house in three weeks (since the late night ER trip). The prednisone helped the pleurisy and jaw pain, but I'm now experiencing a new FOP flare-up in my upper back. This isn't exactly how I pictured this summer to go-- doing my best to…
  • In the week since my last post Ive been onhellip
    3 months ago by p0sitivity In the week since my last post I've been on three different anti-inflammatories (experienced side effects from each of them). I'm now on a high dose of prednisone, a steroid that also helps decrease inflammation, after noticing another FOP flare-up in my jaw. The flare-up is making it more tiring…
  • Needed to go to the ER last night from 9hellip
    4 months ago by p0sitivity Needed to go to the ER last night from 9 pm until 3 am // For the past few days I've been experiencing pain in the left side of my ribs and chest - it hurts to breathe fully and I've been feeling weak. I have a restricted lung capacity…

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