Blog Posts

Letter to Loved Ones

Dear friends and family, I know it may be difficult for you to see what I’m going through, whether it’s through my personal posts or updates when I’m not doing well. I understand if you feel overwhelmed and intimidated at times. You may have never known someone as medically complex as me before. Maybe you’re not sure what to say, or fear you’d

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Filming for CNN!

Throughout my youth I was very self-conscious, tentative, and reserved. My insecurities were greatly heightened by the progression of my disease, FOP, but I hid a lot of what I went through from anyone outside of my immediate family. It was too intimidating to imagine opening up about my struggles and sharing my perspectives on life with a rare disease. I haven’t really

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Spring/Summer Update

The past year has been filled with amazing opportunities, new experiences, challenging realizations, and unexpected setbacks. I’ve had wonderful days surrounded by friends as well as very difficult days due to FOP flare-ups. I haven’t shared much about my personal life in awhile, so I wanted to finally write about some of the things that have been going on. First off,

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Living with Limitations

What would life be like without any medical obstacles, serious physical limitations, or extra accommodations? I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the world. My best friend is

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Finding Acceptance

Confidence and self-love can be challenging to maintain when you’re living with a disability. My disease, FOP, is progressive so I continuously have had to adapt to new physical limitations. I’ve struggled with body issues and many insecurities throughout my life. Before social media, I had a difficult time finding acceptance – in both society and within myself. The Twitter

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  • So happy to be feeling more like myself again Thankhellip
    2 days ago by p0sitivity So happy to be feeling more like myself again. Thank you for all the love and prayers ☀️
  • Ive had a head cold and mild bronchitis for thehellip
    5 days ago by p0sitivity I’ve had a head cold and mild bronchitis for the past week, but I’m gradually beginning to feel better. It’s always a little scary for me to be sick on top of dealing with FOP. My body isn’t able to fight off a sickness as quickly or easily, and certain…
  • Remembering my incredible grandpa this Valentines Day alzassociation ENDALZ TheLongestDay
    1 week ago by p0sitivity Remembering my incredible grandpa this Valentine’s Day  @alzassociation   #ENDALZ   #TheLongestDay 
  • Prince Prancer
    2 weeks ago by p0sitivity Prince Prance(r)
  • One month until Im back in my favorite city Sanhellip
    3 weeks ago by p0sitivity One month until I’m back in my favorite city, San Diego ☀❤ // I especially love visiting the zoo with my family and renting one of these scooters. I’m unable to walk longer distances without feeling fatigued, but this allows me to conserve my energy and still fully enjoy the…
  • Thank you for all the love new followers!  Ahellip
    3 weeks ago by p0sitivity Thank you for all the love, new followers! // A YouTuber recently filmed himself reacting to my CNN profile feature video!! Search “Reaction Time” on YouTube to watch it (he also has some of the nicest fans). ❤️
  • Always grateful for good days and whenever I feel morehellip
    4 weeks ago by p0sitivity Always grateful for good days and whenever I feel more like myself
  • January 27 2013  I reflect back on this journalhellip
    4 weeks ago by p0sitivity January 27, 2013 // I reflect back on this journal entry every year. It’s crazy to see how much my writing style has changed since then and how I’ve grown as an individual. I posted it on Facebook the following week not even realizing how vulnerable it was. The response…
  • Missing these two a little extra today
    4 weeks ago by p0sitivity Missing these two a little extra today
  • My first blog post of the year is dedicated tohellip
    1 month ago by p0sitivity My first blog post of the year is dedicated to everyone who has supported me throughout my life with FOP. ❤️❤️ jasminfloyd.com (link in bio)  #fibrodysplasiaossificansprogressiva 

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