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Filming for CNN!

Throughout my youth I was very self-conscious, tentative, and reserved. My insecurities were greatly heightened by the progression of my disease, FOP, but I hid a lot of what I went through from anyone outside of my immediate family. It was too intimidating to imagine opening up about my struggles and sharing my perspectives on life with a rare disease. I haven’t really

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Spring/Summer Update

The past year has been filled with amazing opportunities, new experiences, challenging realizations, and unexpected setbacks. I’ve had wonderful days surrounded by friends as well as very difficult days due to FOP flare-ups. I haven’t shared much about my personal life in awhile, so I wanted to finally write about some of the things that have been going on. First off,

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Living with Limitations

What would life be like without any medical obstacles, serious physical limitations, or extra accommodations? I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the world. My best friend is

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Finding Acceptance

Confidence and self-love can be challenging to maintain when you’re living with a disability. My disease, FOP, is progressive so I continuously have had to adapt to new physical limitations. I’ve struggled with body issues and many insecurities throughout my life. Before social media, I had a difficult time finding acceptance – in both society and within myself. The Twitter

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Summer/Fall Update

My last blog post was in late May, about a month after a very sudden FOP flare-up began in my jaw. In just three months I went from having over one inch of jaw mobility to less than one centimeter. This progression affected many aspects of my life — primarily my diet, but also talking at length and being able

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  • Cabin circle  the true magic of Camp I havehellip
    2 weeks ago by p0sitivity Cabin circle - the true magic of Camp. I have so many childhood memories of walking up this path hand in hand with my new friends and counselors I adored. We'd chant the cabin cheers we memorized, determined to be the loudest so we could be the first ones into…
  • My baby Prancer turns 14 today!! Ive been feeling especiallyhellip
    3 weeks ago by p0sitivity My baby Prancer turns 14 today!! I've been feeling especially sentimental and emotional lately thinking back to his adoption day in 2003. I was only 10 when we got him & I'm now 24. He's been with me in every Connecticut town we've lived in. He was my greatest comfort…
  • 4 weeks ago by p0sitivity
  • I wonder how many of our neighbors actually saw mehellip
    1 month ago by p0sitivity I wonder how many of our neighbors actually saw me come outside just to take photos of this sunset
  • Happy 21st to one of the most beautiful souls Ihellip
    1 month ago by p0sitivity Happy 21st to one of the most beautiful souls I know. Our friendship began on Tumblr nearly seven years ago and you haven’t left my side since. I love our crazy plans (like spending six weeks together the first time we met in person, including several days at Disney by…
  • I hope everyone has a beautiful week been feeling inspiredhellip
    2 months ago by p0sitivity I hope everyone has a beautiful week been feeling inspired every Sunday thanks to  @madisenkuhn 's encouraging emails (madisen.co)
  • The face of mischief mainecoon
    2 months ago by p0sitivity The face of mischief.  #mainecoon 
  • A year ago today I was filmed for CNN!! Ithellip
    3 months ago by p0sitivity A year ago today I was filmed for CNN!! It was an honor to have the opportunity to share my story and raise awareness of FOP. I've been so touched and inspired by the outpouring of love and support after my feature premiered online last December. To the two people…
  • New blog theme new updates post!  its been fourhellip
    3 months ago by p0sitivity New blog theme, new updates post! ✍ it's been four months since I've been able to edit and publish something I've written and I'm thankful to finally have a little more energy! If you'd like to know more of what's been going on with me, go to jasminfloyd.com (link on…
  • Havent been able to leave the house in three weekshellip
    4 months ago by p0sitivity Haven't been able to leave the house in three weeks (since the late night ER trip). The prednisone helped the pleurisy and jaw pain, but I'm now experiencing a new FOP flare-up in my upper back. This isn't exactly how I pictured this summer to go-- doing my best to…

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