After an amazing year (and only one other blog post), I’m slowly beginning to get back into blogging. I definitely needed to take some time off, just so I could focus on enjoying my travels! I’ll be posting some updates soon, but for now I wanted to begin this Question & Answer blog series. I’ve always enjoyed answering my friends’ questions about FOP, so I wanted to open it up to others as well. I would much rather be able to answer questions about my life with FOP instead of someone wondering about it, even if it’s something that seems obvious or trivial.
These are just a few of the questions I’ve been asked recently. If you have any that come to mind, please feel free to contact me privately or comment on this post!
- Are you always in pain? I live with chronic pain, meaning that I have some level of pain every day. Sometimes it’s mainly fatigue or discomfort and other times it’s more intense pain. It’s difficult to predict my pain level on any given day, but it’s generally mild to moderate unless I’m dealing with an FOP flare-up. If a flare-up is present, the pain is much greater and more constant.
- Can I hug you? Yes, I love hugs! I’ve had many instances where people are afraid to hug me because they don’t want to hurt me. A few have even avoided hugging me for this reason, even if we’re in a group setting with other friends. This has made me feel bad and slightly awkward. If you’re ever hesitant about hugging me, you can always ask me just to make sure it’s okay.
- How do you stay so positive? I stay positive by writing, reflecting, listening to music, and praying. I turn to my faith and I try to always maintain a sense of peace. This helps me cling to sources of happiness and joy, even on my darkest days. I’ve learned that it’s okay to not always be positive, so I allow myself time to feel whatever it is I’m feeling. I’m very grateful to have wonderful people in my life who have given me invaluable support, love, and encouragement. My support systems are vital to me.
- How does FOP affect you currently? FOP currently affects my neck, back, jaw, shoulders, elbows, hips, and ankles. I have very limited mobility in my upper body due to the way FOP has progressed. I’m unable to reach my arms above my head or extend them completely straight. I don’t have any mobility in my neck. My jaw is locked with about half a centimeter of mobility left. I also have scoliosis and visible extra bone growth on my back and ankles.
- What do you need help with due to FOP? I need assistance with washing and styling my hair due to my restricted arm mobility. I sometimes need help with meal preparation, as it’s challenging for me to use the oven by myself. I also rely on my family and friends for help with things like grocery shopping and transportation.
If you have any additional questions for me, either about FOP or my personal life, you can anonymously send them to me at: jasminfloyd.com/contact-me or click here to email me. (Only I will see them.) I’m hoping to make more blog posts like this in the new year!
Please note: all of my answers are personal to me, as everyone with FOP is affected by it differently. We also have varied experiences and lifestyles.
I love that you posted this Jasmin! Faith shines in you in every way! Love you XOXO
Thank you, Cathee!! Love you, too! Hoping I can visit soon! XO
Welcome back Jasmine! I always enjoy reading about your challenges and adventures.
Thank you for your continued support!!