To My Camp Counselors

I feel very fortunate to have grown up less than 10 minutes away from an organization that has remained close to my heart: Paul Newman’s The Hole in the Wall Gang Camp (THITWGC) in Ashford, Connecticut. It gave me all that I needed to thrive as a young girl with a life-threatening condition. Camp subsequently changed my life without me

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How Flare-ups Affect Me

Living in a body with FOP is like being forced to ride a completely different roller coaster every day with no time in between to catch your breath. I never know when the next drop (unexpected flare-up) might be, if I’ll stop going in loops (seemingly never-ending pain), or if it’ll be a smoother ride for a while. At the

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2015 Highlights

Happy New Year!! These were some of my favorite days of 2015. 1. June 13th – mini photo op with my Boston-area friends before we watched our favorite music duo, Karmin, open for Lindsey Stirling! So many laughs, photos, and inside jokes. 2. September 8th – had a good day where I felt more like myself following so many weeks

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  • New blog theme new updates post!  its been fourhellip
    1 day ago by p0sitivity New blog theme, new updates post! ✍ it's been four months since I've been able to edit and publish something I've written and I'm thankful to finally have a little more energy! If you'd like to know more of what's been going on with me, go to jasminfloyd.com (link on…
  • Havent been able to leave the house in three weekshellip
    3 weeks ago by p0sitivity Haven't been able to leave the house in three weeks (since the late night ER trip). The prednisone helped the pleurisy and jaw pain, but I'm now experiencing a new FOP flare-up in my upper back. This isn't exactly how I pictured this summer to go-- doing my best to…
  • In the week since my last post Ive been onhellip
    1 month ago by p0sitivity In the week since my last post I've been on three different anti-inflammatories (experienced side effects from each of them). I'm now on a high dose of prednisone, a steroid that also helps decrease inflammation, after noticing another FOP flare-up in my jaw. The flare-up is making it more tiring…
  • Needed to go to the ER last night from 9hellip
    1 month ago by p0sitivity Needed to go to the ER last night from 9 pm until 3 am // For the past few days I've been experiencing pain in the left side of my ribs and chest - it hurts to breathe fully and I've been feeling weak. I have a restricted lung capacity…
  • One month ago thankful for my best friend shayweasel hellip
    2 months ago by p0sitivity One month ago- thankful for my best friend  @shayweasel  & her Noodle ❤️ even driving to the airport and making rest stops became an adventure!
  • One of my favorite traditions is helping to sort bookshellip
    2 months ago by p0sitivity One of my favorite traditions is helping to sort books for our church's 4th of July jamboree! There's nothing like kids books to make you feel nostalgic ❤️
  • Happy Fathers Day
    2 months ago by p0sitivity Happy Father's Day
  • One year ago today Thankful for such wonderful friends andhellip
    2 months ago by p0sitivity One year ago today. Thankful for such wonderful friends and the memories that have filled our spirits every single day, in the midst of everything going on in the world. ❤️️‍ (not pictured:  @kclarkeeeee )
  • My neighbors cat is the friendliest lil beauty
    2 months ago by p0sitivity My neighbor's cat is the friendliest lil beauty
  • 3 months ago by p0sitivity

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