My family and I used to manage a greeting cards and gifts company to raise awareness for my rare disease, Fibrodysplasia Ossificans Progressiva (FOP). My life revolved around planning my new card designs, watching my dad scan, print, and prepare the cards, and helping my mom package and label our products for the various craft…
Category: Life & Family
To My Camp Counselors
I feel very fortunate to have grown up less than 10 minutes away from an organization that has remained close to my heart: Paul Newman’s The Hole in the Wall Gang Camp (THITWGC) in Ashford, Connecticut. It gave me all that I needed to thrive as a young girl with a life-threatening condition. Camp subsequently…
2015 Highlights
Happy New Year!! These were some of my favorite days of 2015. 1. June 13th – mini photo op with my Boston-area friends before we watched our favorite music duo, Karmin, open for Lindsey Stirling! So many laughs, photos, and inside jokes. 2. September 8th – had a good day where I felt more like…
Traveling to California
It’s almost been two months since I traveled by myself to Southern California! I had an amazing time, but I can wholeheartedly say that it was a miracle I was able to fly. Up until the night before traveling I was still experiencing a lot of pain (refer to my last blog post here) and felt very…
Two Years Later: A Tribute
Today’s post is going to be a little different than what I normally write about, but it’s something I felt like I needed to share in its entirety to continue healing my heart. It’s the story of my lightly-striped marmalade-colored tabby cat who lost his second battle with cancer exactly two years ago (March 2,…