adapting to life with a rare disease, FOP.
World Rare Disease Day is this Saturday, February 28th, 2015! I decided to dedicate this post to raise some awareness of rare diseases as a whole. I hope you will take a few minutes to read the facts, watch the videos, and share this post with a friend! Thank you. :) In the United States,…
The past few months have been frustrating for me due to the freezing cold weather and the insane amount of snow that Connecticut has gotten over the course of a month (it’s only been a month!?). Because of FOP’s progression the past couple of years, it has become more difficult for me to remain active…
Hi! I’m Jasmin. This is my first ever blog post and, to be honest, I’ve been a little hesitant to start. Though many people have encouraged me and have shown support of the idea, I needed to make sure I felt ready to share such personal posts with everyone. I’ve been spending the past few…