One Spirit, Two Skeletons

adapting to life with a rare disease, FOP.

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First post!

Posted on February 21, 2015January 21, 2023 by Jasmin Floyd

Hi! I’m Jasmin.

This is my first ever blog post and, to be honest, I’ve been a little hesitant to start. Though many people have encouraged me and have shown support of the idea, I needed to make sure I felt ready to share such personal posts with everyone. I’ve been spending the past few months writing nearly every day, mostly in preparation for new posts (also because I love to write). I wanted a way to be able to share more of my story than I’ve ever shared before.

I was diagnosed with a rare, debilitating bone disease known as Fibrodysplasia Ossificans Progressiva (FOP) when I was 5 1/2 years old. FOP causes my muscles and connective tissues to turn to bone, gradually creating a “second” immobilizing skeleton. This condition is painful, spontaneous, and progressive. There are less than 300 known cases in the United States and 800 worldwide.

Living with a serious illness is often challenging and frustrating, but I’m determined to not let it define who I am or stop me from achieving a goal or dream. I have a strong faith in God, a crazy love for cats, and a lot of positivity and joy in my heart.

I’m excited to finally make this blog public! It’s been on my mind for the longest time. Feel free to post a comment, share with a friend, or subscribe via email! xo

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10 thoughts on “First post!”

  1. Noodle & : > D)= says:
    February 26, 2015 at 3:30 pm

    I love that you are blogging, I love your blog (and its title) and I love you. Your spirit, intelligence and artistry continue to be a gift to us all. Thank you, Jasmin, for your courage and willingness to share that gift via this medium, where who knows how many others will benefit from your great wisdom, your unique experiences and your sparkling spirit.

    Reply
    1. Jasmin Floyd says:
      February 26, 2015 at 4:39 pm

      Noodle! Thank you so much :) I love you, too!! xoxo

      Reply
  2. Amanda says:
    February 23, 2015 at 9:42 am

    Well done Jasmin! Love the title of your blog and will be a faithful reader. Its time the world got to know SUCH a special person.

    Reply
    1. Jasmin Floyd says:
      February 23, 2015 at 5:13 pm

      Thank you so much!!

      Reply
  3. marilyn says:
    February 22, 2015 at 9:49 pm

    It takes a lot of courage to share your story. It’s an honor to know you & your mom.

    Reply
    1. Jasmin Floyd says:
      February 23, 2015 at 7:52 am

      Thank you :)

      Reply
  4. Cathee Antonetz says:
    February 22, 2015 at 10:42 am

    Jasmin, I love your blog and how you are sharing your life journey. You are the richest young woman I know, so overflowing with strength and faith in God. To see Mandisa’s song Overcomer listed on your blog is one of many, many entries that made my heart leap with joy as it is one of my favorites. From now on I will picture your smiling face and generosity of spirit towards others when listening to that uplifting music. You are a shining example of all that is good in this world, connecting beyond family and friends who love you dearly to reach out to others. I look eagerly to your future posts. You are one of my life’s greatest blessings. I love seeing your pictures posted and I Love you!!

    Reply
    1. Jasmin Floyd says:
      February 22, 2015 at 10:48 am

      You are so kind! Thank you for your incredible words of inspiration. I love you!!

      Reply
  5. Julie Collins says:
    February 22, 2015 at 6:08 am

    Hi Jasmin congratulations on starting your blog. You write very well and I’m looking forward to following you.

    Reply
    1. Jasmin Floyd says:
      February 22, 2015 at 10:46 am

      Hi Julie! Thank you so much :)

      Reply

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