What would life be like without any medical obstacles, serious physical limitations, or extra accommodations?
I’d live independently. I wouldn’t need help with everyday tasks. I’d be able to easily maintain college classes or work a full-time job. I’d go on unplanned road trips across the United States with my friends. I would travel the world.
My best friend is currently studying and working in Europe for a semester. It’s wonderful seeing her so content, enjoying each day and figuring things out for herself. I love looking through her photos from her travels and hearing about what she’s planning next.
We’ve been keeping in touch by texting, but at times it does make me feel somewhat sad — it’s taken me awhile to pinpoint exactly why I’ve felt this way. These challenging emotions are very personal and relate more to my own life and my body’s restrictions than anything else.
I’ll never know a world fully without FOP and its effects. The progression of this disease has completely changed the course of my life. Limited mobility prevents me from moving freely and I’m constantly dependent on other people. There are many things that are physically impossible for me, and some I have to avoid doing so I don’t overexert myself.
It’s easy to find myself daydreaming about a more adventurous life where I wouldn’t need to be so cautious and aware of my limitations — my body is the only thing holding me back.
However, my somewhat more limited life is still incredibly exciting and fulfilling. I have ambitions, goals, and dreams that might even surprise some people. I love traveling to new places by myself and planning adventures with friends. If I want to experience something, I try to figure out how to make it happen.
It may seem like a freer lifestyle would simply be easier, but it’s not what I’m used to. I’ve become accustomed to this body, restrictions and all. Even though the progression of my disease has made many things unrealistic for me, I wouldn’t change anything about my circumstances. I’m happy with the direction my life is headed, and I’m equally happy to be able to support my best friend in her own amazing endeavors.
San Diego, California, USA (November 2016)
Hi Jasmin! My name is Renee. I was diagnosed with Multiple Sclerosis in 1991. it has progressed, and I now using a wheel chair to get round. I can relate to having a “new normal.” My life with MS could be a lot better, but could also be a heckuva lot worse. I admire your positive attitude, as well as your determination to just “make [things] happen.”
From Brasil / Brazil. Oh, u are so pretty ! God bless you. Your spirit shares hope.
You are so beautiful, Jasmin.
I’m so sorry that some things you’d like to do are not possible, Jasmin, but I’m more proud of you than ever for what you have accomplished and for the wonderful person you’ve become 😘
Jasmin….. I feel privileged to share in this blog with you. I value you’re very honest discussion about your feelings. Your willingness to share helps me to wrap my mind around what you’re going through and in the process to become more empathetic to others.
Also, what a wonderful friend you are….sharing your friend’s adventures and celebrating along with her! We should all be so lucky to find friends like you!
Jasmin as always you never fail to inspire others with your positive outlook on life and living it to the fullest regardless of any physical limitations that challenge you. You are no doubt aware of the fact that the greatest limitations we often cope with are the ones imposed by and accepted by ones own mind; as they can have far greater implications than the physical realm. Your ability to see the light beyond the horizon of what is possible is your gift that makes you all the more remarkable and inspires others to see the light in themselves. You are my inspiration.! Bob
Jasmin, it is so humbling to read about your limitations. I complain about my minuet ailments and think to myself, “shame on me”, for feeling sorry formyself. God put you on this earth for a reason and you are sharing that reason with us – courage, love, beauty and wisdom. I admire your “strength” and positive out look with the “cards” you were dealt. You are a pure “jewel”. Distance has kept us from pysically being relatives, but you are part of my family which makes me feel blessed. If I may quote; “We are what we reap”. You are a blessing and will be blessed. Love, your cousin, Garda.
It sucks that the harsh reality of FOP is preventing you from living a more carefree lifestyle that many take for granted, but it’s great that you’re learning more about yourself and how to make your dreams come true – and that you’re able to maintain a positive attitude through such adversity. I hope you know that you’re an inspiration to everyone, Jasmin.
Jasmin,
Here it is the start of Holy Week and to read your post is truly reflective of the beautiful and faithful young woman you are! Your best friend is so blessed to have you in her life supporting her life journey. I marvel at your heart of gold and the loveliness you bring to the world. God bless you! I pray the Lord gives you extra special blessings this Easter Sunday! Much love,