One Spirit, Two Skeletons

adapting to life with a rare disease, FOP.

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Post Archives

February 2022

  • 28: A Letter to FOP (#2) (10)

March 2021

  • 01: 12 Facts About FOP in Honor of Rare Disease Day (4)

February 2021

  • 14: A Tribute to My Second Home (1)

December 2018

  • 12: Frequently Asked Questions (4)

January 2018

  • 19: Letter to Loved Ones (18)

October 2017

  • 15: Filming for CNN! (5)

August 2017

  • 18: Spring/Summer Update (1)

April 2017

  • 10: Living with Limitations (9)

February 2017

  • 19: Finding Acceptance (14)

November 2016

  • 30: Summer/Fall Update (40)

May 2016

  • 23: 23 Years (7)
  • 19: The Act of Surrendering (7)

April 2016

  • 23: Hope for a Cure (12)
  • 11: Airplanes & Independence (5)

February 2016

  • 21: One Year! (6)

January 2016

  • 26: To My Camp Counselors (3)
  • 24: How Flare-ups Affect Me (2)
  • 02: 2015 Highlights (2)

December 2015

  • 22: Body Image & Insecurities (12)

November 2015

  • 28: Traveling to California (8)

October 2015

  • 03: Health Update: Flare-ups (13)

March 2015

  • 18: A Letter to FOP (13)
  • 02: Two Years Later: A Tribute (15)

February 2015

  • 26: Rare Disease Day (2/28/15) (6)
  • 23: Winter Health Update (10)
  • 21: First post! (10)


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Menu
  • Home
    • All Posts
  • About Me
    • My Story
    • Features
    • Get to Know Me
  • About FOP
    • FOP Community
    • Fact List
    • Detailed
  • Positivity
    • Music
    • Quotes
    • Articles
  • Contact Me
  • FAQ
  • How to Help
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