One Spirit, Two Skeletons

adapting to life with a rare disease, FOP.

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Features

Screenshot from my CNN feature, 2016

Here are a few original articles that have highlighted my life with FOP!

  • CNN Health (+ video)
  • The Mirror UK (most recent)
  • Good Housekeeping
  • Love What Matters
  • The Washington Post
  • Metro UK
  • News Australia
  • The Advance-Titan

A popular YouTuber, Tal Fishman of Reaction Time, posted this video in 2018 in response to my CNN feature!


(updated July 2022)

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